Café Scientifique 2015-2016
Café Scientifique is co-sponsored by Montana INBRE and Montana State University COBRE programs.
Monday, Sept. 21, 2015
"The Miracle of Breathing: The Science and Personal Story of Cystic Fibrosis and Lung Transplantation"
Isabel Stenzel Byrnes
Monday, Sept. 21, 2015
6:00 – 7:30pm
Mary Alice Fortin Conference Center,
Billings Clinic, 2800 10th Ave. N., Billings, MT
Isabel Stenzel Byrnes, MSW MPH, author, patient advocate and social worker, will provide an overview of the scientific advancements, in layman's terms, in cystic fibrosis(CF), the most common life-threatening genetic disorder in Caucasians as well as lung transplantation. This discussion will include the clinical aspects of the disease, including the genetics, pathophysiology, management of the disease, showing how medical advancements are increasing the life expectancy and quality of life for patients. In addition, the speaker will discuss the psychosocial aspects of living with CF, including coping with chronic illness, the impact of illness on relationships, the gift of a support network, and the wisdom learned from illness. Lastly, the speaker will address one of the most transformative modern medical miracles- lung transplantation for cystic fibrosis. Isabel will discuss her global advocacy work, together with her late twin sister Anabel, to increase awareness about cystic fibrosis and organ donation using both their published memoir and documentary film entitled, "The Power of Two."
About the Presenter:
Isabel Stenzel Byrnes, 43, is an author, patient advocate and social worker from Redwood City, California. She graduated from Stanford University and has a Masters degree in Social Welfare and Public Health from the University of California, Berkeley. Isabel has worked with families affected by cystic fibrosis (CF) for 24 years. Isabel has served as a Board Member for Cystic Fibrosis Research, Inc., and has chaired their educational conference for 10 years; she also is an ambassador for Donor Network West and served on several committees for the United Network of Organ Sharing (UNOS). After a lifetime of challenges from cystic fibrosis, Isabel and her late twin Anabel received double lung transplants. Their memoir, "The Power Of Two: A Twin Triumph over Cystic Fibrosis" was published by the University of Missouri Press in 2007, with a subsequent Japanese edition released in Japan in 2009. The twins served as global advocates for cystic fibrosis awareness and organ donation. Their work inspired a documentary film also called "The Power Of Two," which examines the CF and transplant experience in the USA and in Japan. The film is currently available nationwide. In their free time, Isabel enjoys hiking, swimming, backpacking, traveling and spending time with her husband, family and friends.
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